Hi all, I have had this condition for 24 years on an almost daily basis. Its wrecking my head as so far as embarrassment and anxiety go. This anxiety and embarrassment , I must add are a by product of a greater cause. I haven't drunk alcohol in 4 years and no change. I get the red ears thing kicking in between 5 and 6-30 pm every day. I have tried changes to diet (no dairy, wheat / Gluten , modified foods, processed foods, caffeine, preservatives, seafood) = no change. I have broken my jaw at the TMJ joint (just infront of my right ear and I thouoght that was a culprit but now after reading so many similar stories I doubt it. I lost 1 x lung, spleen and ruptured many organs in a car accident but again after reading so many similar stories from people who have no similar medical history I also dont see this as relevant. I have had physio, chiropractic treatments etc on my back and next (manipulations and readjustments) and this seems to help for a few days then its back to the same old pattern . One thing I did notice yesterday is that when I feel one of these episode coming on, like Im overheating etc I saw that my entire chest was red then blended into a darker red in my face and my ears were just glowing crimson. So I beleive there is a metabolic trigger or catalyst that sends blood to the capillaries network but the "return flow" doesn't engage so to speak. Its almost as if the blood gets sent to the upper extremities (ears, head) as it does after a hot shower but fails to "switch off" for a few hours. It doesnt drain back down... Like a fight or flight thing...like the body is in panic mode... God its annoying the hell outta me. I also get bi-lateral temporal pounding when these episodes start up.. Like the worst headaches you can imagine because I can literally feel the blood pumping through the blood vessels in front of and to the ears. I have tried all sorts of medications, vaso dilators, vaso constrictors, anti inflammatories, massive vitamin doses, (B2, B 12 , C ..everything). Prednisone, pain killers...nothing to date has helped in the slightest. I work at a desk all day. I finish work > drive for about 40 minutes > get home and this redness thing kicks in. It rarely happens in the weekends but if I am hunched over a computer all day and I straighten out after driving home it kicks off. Like a massive release of blood to the upper capillaries. Someone must have an answer. I am currently seeing a neurologist who wants to x ray the area of my spine (Occipital) area, where the head joins the spine and also do a EEG to see brain activity. After 20 or so years of no solution, this condition is ruling my life. Im not kidding, it puts me in bad moods when it happens and I become very anti social because of the embarrassment factor. I will update this post with a result of the Nuro dudes suggestions in a week or so.
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Hi all, I have had this condition for 24 years on an almost daily basis. Its wrecking my head as so far as embarrassment and anxiety go. This anxiety and embarrassment , I must add are a by product of a greater cause. I haven't drunk alcohol in 4 years and no change. I get the red ears thing kicking in between 5 and 6-30 pm every day. I have tried changes to diet (no dairy, wheat / Gluten , modified foods, processed foods, caffeine, preservatives, seafood) = no change. I have broken my jaw at the TMJ joint (just infront of my right ear and I thouoght that was a culprit but now after reading so many similar stories I doubt it. I lost 1 x lung, spleen and ruptured many organs in a car accident but again after reading so many similar stories from people who have no similar medical history I also dont see this as relevant. I have had physio, chiropractic treatments etc on my back and next (manipulations and readjustments) and this seems to help for a few days then its back to the same old pattern . One thing I did notice yesterday is that when I feel one of these episode coming on, like Im overheating etc I saw that my entire chest was red then blended into a darker red in my face and my ears were just glowing crimson. So I beleive there is a metabolic trigger or catalyst that sends blood to the capillaries network but the "return flow" doesn't engage so to speak. Its almost as if the blood gets sent to the upper extremities (ears, head) as it does after a hot shower but fails to "switch off" for a few hours. It doesnt drain back down... Like a fight or flight thing...like the body is in panic mode... God its annoying the hell outta me. I also get bi-lateral temporal pounding when these episodes start up.. Like the worst headaches you can imagine because I can literally feel the blood pumping through the blood vessels in front of and to the ears. I have tried all sorts of medications, vaso dilators, vaso constrictors, anti inflammatories, massive vitamin doses, (B2, B 12 , C ..everything). Prednisone, pain killers...nothing to date has helped in the slightest.
I work at a desk all day. I finish work > drive for about 40 minutes > get home and this redness thing kicks in. It rarely happens in the weekends but if I am hunched over a computer all day and I straighten out after driving home it kicks off. Like a massive release of blood to the upper capillaries. Someone must have an answer. I am currently seeing a neurologist who wants to x ray the area of my spine (Occipital) area, where the head joins the spine and also do a EEG to see brain activity.
After 20 or so years of no solution, this condition is ruling my life. Im not kidding, it puts me in bad moods when it happens and I become very anti social because of the embarrassment factor.
I will update this post with a result of the Nuro dudes suggestions in a week or so.