Thanks for the info:, jt- my daughter has had RES since she was 4-and she's 22 now.Either ear, but not usually both together.She has a genetic problem with her hypothalamus, so has low female hormones.She also has scoliosis and kyphosis,which produces a lot of neck tension.However, the RES began way before her back and neck problems. Neither I nor her father have RES.We don't have allergies either, yet she has extreme reactions to some allergens. Her ears always went red right after her evening meal at 6pm.I don't think this is a coincidence. Many people here have said the same. Recently, she suffered from Trigeminal Neuralgia-very painful ! The hospital suggested it was caused by herpes simplex(chicken pox), and her face swelled and was covered in a patchy raised rash.The consultant Neurologist took one look at the photo I took when it happened and said it was definitely an allergic reaction(trout pout included). When she eats, her right ear goes bright red and is hot. But now, also ,the redness goes down her cheek from ear to jaw.When her cheek is red, she has more Trigeminal pain too.That is debilitating. I don't know if these are related.We do need to correlate all the symptoms and lifestyles of everyone here to find the cause. The RES happens even if she falls asleep. She doesn't drink alcohol at all.It maybe a food allergy.We're testing tomatoes and the rest of the nightshade family of foods ,and seeds at the moment. She also has Psoriasis. She doesn't eat much junk food and has a healthy diet.
All four of my children have this. I have been dealing with this as a mother since they were about 4yrs.
It has been very hard to deal with emotionally you dont want to see your child in pain and think there is nothing you can do about it. I would feel their ears and it would be almost as hot as a burner on the stove. It is so bad that I actually was afraid that this is how people spontaneously combust!!
Also, this heat is so close to the brain area and I dont know whats going on internally temp wise.
At first when they were around 4 it was just their ear or ears turning red when it was going to precipitate (rain,snow) outside. They got the reputation in our family of being more accurate than the weather forecasters, depending on the shade of red their ear or ears gave off.
As they grew older it would happen in response to stress also. I noticed that it was more apt to happen if it was emotional stress rather than physical stress.
None of my sons can go to the store in the evening, especially Walmart, they always have a Red Ear Attack in that store no matter what time of day we go.
I am a biology student and this whole process was very intriguing to me.
I have been looking for clues and answers from Drs (who always disregard it; seems they dont want to recognize the non- "life" threatening things as one of our Drs put it) and non really want to look into what it is, their just guessing too!!
I am not a medical student but I know some of the body processes that I have studied so far and some of them make sense to me in my own conclusions of whats happening to my sons.
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VERY SHORT ABBREVIATED VERSION of tidbits I have gathered through the years about body processes:
Vasodialation of the blood vessels is a response from certain hormones the body releases into the system in order to keep the body in homeostasis. This process is started through the nerves in the body.
parvocellular vasopressin cells that project to many areas of the hypothalamus and limbic system, as well as to the brainstem and spinal cord. These neurons are involved in blood pressure regulation and thermoregulation.
The PVN receives afferent inputs from many brain regions. Amongst these, inputs from neurons in structures adjacent to the anterior wall of the third ventricle ("AV3V region") carry information about the electrolyte composition of the blood, and about circulating concentrations of hormones
In controlling body temp:
Secretion of norepinephrine, epinephrine, and thyroxine to increase heat production
heat transfer mechanisms the body uses are radiation, conduction and convection and evaporation of perspiration
Optimal "Normal":
The skin temperature of 34 C is a typical skin temperature
The normal core body temperature is 37 C.
The body works best when specific body constants are maintained such as: body temperature of37 o C ; blood pH of7.35 ; blood pressure 120/80 mmHg and 0.1% blood sugar. These constants can vary among individuals, such as: different metabolic rates of individuals affect body temperature ; different situations or demands on body (eg.) exercise ; blood pressure difference between adult and children
The cause of the variable temperature in infants and young immature animals is the imperfect development of the nervous regulating mechanism
heat production and heat loss vary considerably in different parts of the body
vascularized extremities to conduct body heat to the air
Body temperature normally fluctuates over the day, with the lowest levels at 4 A.M. and the highest at 6 P.M..
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http://en.wikipedia.org/wiki/Body_temperature#Limits_compatible_with_life
http://en.wikipedia.org/wiki/Vasopressin
http://en.wikipedia.org/wiki/Pyrexia
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I know I just want any information I can find to help communicate to someone in the medical field that this is psychologically and physically and socially stressful to my children ...
They just dont get that instead of sitting around the fire place enjoying the winter weather everyone is sitting around rubbing ice cubes on their ears seeing who can melt them the fastest!!
Comment
Thanks for the info:, jt- my daughter has had RES since she was 4-and she's 22 now.Either ear, but not usually both together.She has a genetic problem with her hypothalamus, so has low female hormones.She also has scoliosis and kyphosis,which produces a lot of neck tension.However, the RES began way before her back and neck problems.
Neither I nor her father have RES.We don't have allergies either, yet she has extreme reactions to some allergens.
Her ears always went red right after her evening meal at 6pm.I don't think this is a coincidence.
Many people here have said the same.
Recently, she suffered from Trigeminal Neuralgia-very painful ! The hospital suggested it was caused by herpes simplex(chicken pox), and her face swelled and was covered in a patchy raised rash.The consultant Neurologist took one look at the photo I took when it happened and said it was definitely an allergic reaction(trout pout included).
When she eats, her right ear goes bright red and is hot. But now, also ,the redness goes down her cheek from ear to jaw.When her cheek is red, she has more Trigeminal pain too.That is debilitating.
I don't know if these are related.We do need to correlate all the symptoms and lifestyles of everyone here to find the cause.
The RES happens even if she falls asleep.
She doesn't drink alcohol at all.It maybe a food allergy.We're testing tomatoes and the rest of the nightshade family of foods ,and seeds at the moment.
She also has Psoriasis.
She doesn't eat much junk food and has a healthy diet.
Parent comment
All four of my children have this. I have been dealing with this as a mother since they were about 4yrs. It has been very hard to deal with emotionally you dont want to see your child in pain and think there is nothing you can do about it. I would feel their ears and it would be almost as hot as a burner on the stove. It is so bad that I actually was afraid that this is how people spontaneously combust!! Also, this heat is so close to the brain area and I dont know whats going on internally temp wise. At first when they were around 4 it was just their ear or ears turning red when it was going to precipitate (rain,snow) outside. They got the reputation in our family of being more accurate than the weather forecasters, depending on the shade of red their ear or ears gave off. As they grew older it would happen in response to stress also. I noticed that it was more apt to happen if it was emotional stress rather than physical stress. None of my sons can go to the store in the evening, especially Walmart, they always have a Red Ear Attack in that store no matter what time of day we go. I am a biology student and this whole process was very intriguing to me. I have been looking for clues and answers from Drs (who always disregard it; seems they dont want to recognize the non- "life" threatening things as one of our Drs put it) and non really want to look into what it is, their just guessing too!! I am not a medical student but I know some of the body processes that I have studied so far and some of them make sense to me in my own conclusions of whats happening to my sons. ---------------------------------------- ---------------------------------------- VERY SHORT ABBREVIATED VERSION of tidbits I have gathered through the years about body processes: Vasodialation of the blood vessels is a response from certain hormones the body releases into the system in order to keep the body in homeostasis. This process is started through the nerves in the body. parvocellular vasopressin cells that project to many areas of the hypothalamus and limbic system, as well as to the brainstem and spinal cord. These neurons are involved in blood pressure regulation and thermoregulation. The PVN receives afferent inputs from many brain regions. Amongst these, inputs from neurons in structures adjacent to the anterior wall of the third ventricle ("AV3V region") carry information about the electrolyte composition of the blood, and about circulating concentrations of hormones In controlling body temp: Secretion of norepinephrine, epinephrine, and thyroxine to increase heat production heat transfer mechanisms the body uses are radiation, conduction and convection and evaporation of perspiration Optimal "Normal": The skin temperature of 34 C is a typical skin temperature The normal core body temperature is 37 C. The body works best when specific body constants are maintained such as: body temperature of37 o C ; blood pH of7.35 ; blood pressure 120/80 mmHg and 0.1% blood sugar. These constants can vary among individuals, such as: different metabolic rates of individuals affect body temperature ; different situations or demands on body (eg.) exercise ; blood pressure difference between adult and children The cause of the variable temperature in infants and young immature animals is the imperfect development of the nervous regulating mechanism heat production and heat loss vary considerably in different parts of the body vascularized extremities to conduct body heat to the air Body temperature normally fluctuates over the day, with the lowest levels at 4 A.M. and the highest at 6 P.M.. ---------------------------------------- http://en.wikipedia.org/wiki/Body_temperature#Limits_compatible_with_life http://en.wikipedia.org/wiki/Vasopressin http://en.wikipedia.org/wiki/Pyrexia ---------------------------------------- I know I just want any information I can find to help communicate to someone in the medical field that this is psychologically and physically and socially stressful to my children ... They just dont get that instead of sitting around the fire place enjoying the winter weather everyone is sitting around rubbing ice cubes on their ears seeing who can melt them the fastest!!