Let me start by saying that my intent is to inform and not to frighten. I suffered severe chemical Truma to my ears, and shortly thereafter I started to experience RES. After some time the problem dissappeared. My left ear was the one to get hot and red, and it would last for about an hour or so. The problem returned, but very sporadically. It's important to note that the ear lobe does not get red as there is no cartilage In the lobe. I have researched this problem, and The results are frightening. Red ears, or red ear, is a marker for a serious autoimmune desease, Relspsing Polychrondritis. When Coupling the red ear with cartilage issues, mainly joint pain, my concern level went vertical. RPC is a very rare desease. It is difficult to diagnose, and little is known about this desease. Only 3.5 people out of a million are diagnosed with RPC: there is no cure, treatment options are limited to NSAIs, and steroids, and the complexion of the desease changes with regulalarity. I have had a sed rate, & C- reactive test done. The sed rate is slightly elevated, but the c- reactive is normal. I will discuss this with my GP to determine where to go from here.
Hi Suzanne,I just read your story it is simmilar to mine exept in my case it is my nose.it swells up is deep red painfull to touch an i also have a tremendous headach too sometimes and feel powerless.i consulted different doctores and finally im seeing a doctor for rheumatism.He is cecking me for relapsed polychondritis and morbus wegener now.both not good but i hope i will get a diagnose and treatment.:(
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Comment
Let me start by saying that my intent is to inform and not to frighten. I suffered severe chemical Truma to my ears, and shortly thereafter I started to experience RES. After some time the problem dissappeared. My left ear was the one to get hot and red, and it would last for about an hour or so. The problem returned, but very sporadically. It's important to note that the ear lobe does not get red as there is no cartilage In the lobe. I have researched this problem, and The results are frightening. Red ears, or red ear, is a marker for a serious autoimmune desease, Relspsing Polychrondritis. When Coupling the red ear with cartilage issues, mainly joint pain, my concern level went vertical. RPC is a very rare desease. It is difficult to diagnose, and little is known about this desease. Only 3.5 people out of a million are diagnosed with RPC: there is no cure, treatment options are limited to NSAIs, and steroids, and the complexion of the desease changes with regulalarity. I have had a sed rate, & C- reactive test done. The sed rate is slightly elevated, but the c- reactive is normal. I will discuss this with my GP to determine where to go from here.
Parent comment
Hi Suzanne,I just read your story it is simmilar to mine exept in my case it is my nose.it swells up is deep red painfull to touch an i also have a tremendous headach too sometimes and feel powerless.i consulted different doctores and finally im seeing a doctor for rheumatism.He is cecking me for relapsed polychondritis and morbus wegener now.both not good but i hope i will get a diagnose and treatment.:( .