I also think rycer is onto something with Inflamation as a likely cause. I live in the tropics now after living in a cooler climate and this condition is a nightmare for me because of the constant heat.My head feels very inflammed and hot showers, direct sun or high humidity triggers episodes and results in feelings of embarassment because of the state of my ears. First one ear starts feeling red and I get throbbing bi-lateral temporal headaches then audio sensitivity then the other ear follows suit. This lasts for 2 - 4 hours then I feel washed out afterwards. This happens every day but never in the morning. Triggers are alcohol, heat, stress, touching of the ears. I have had this for 22 years. I have tried every type of specialist, natural therapy treatments,beta blockers, vaso dilators, migraine treatments, TMJ (jaw) surgery, sinus surgery x 2 and the only thing that has given me any relief is prednisone. This is a strong steroid but it is such a relief,. It makes me feel like "normal" people must feel. You cant take long doses of preednisone as it has systemic impact and especially on the liver. I pray to god that someone can get to the bottom of this as it controls what I do and how I feel about myself. What amazes me is that no medical "professional" can nail it down and they dont seem to be very interested (in my experience). Please help
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I also think rycer is onto something with Inflamation as a likely cause.
I live in the tropics now after living in a cooler climate and this condition is a nightmare for me because of the constant heat.My head feels very inflammed and hot showers, direct sun or high humidity triggers episodes and results in feelings of embarassment because of the state of my ears. First one ear starts feeling red and I get throbbing bi-lateral temporal headaches then audio sensitivity then the other ear follows suit. This lasts for 2 - 4 hours then I feel washed out afterwards. This happens every day but never in the morning. Triggers are alcohol, heat, stress, touching of the ears.
I have had this for 22 years. I have tried every type of specialist, natural therapy treatments,beta blockers, vaso dilators, migraine treatments, TMJ (jaw) surgery, sinus surgery x 2 and the only thing that has given me any relief is prednisone. This is a strong steroid but it is such a relief,. It makes me feel like "normal" people must feel. You cant take long doses of preednisone as it has systemic impact and especially on the liver. I pray to god that someone can get to the bottom of this as it controls what I do and how I feel about myself. What amazes me is that no medical "professional" can nail it down and they dont seem to be very interested (in my experience). Please help