Hi Rajnikant, I have been tested for carcinoid (5HIIA urine collection) and for systemic mastocytosis (imidazole acetic acid urine collection) and all tests have been good. My doctor takes this seriously but they can´t find the cause. Now it´s almost one year ago when I first noticed this. Regarding stress I can tell you that I have been in a very stressful situation since 1 1/2 years ago when they stared to investigate a cyst in my spleen. They didn´t know if it was malignant or benign. One year follow up of the cyst showed no change in size or shape so it´s benign but I´m still kind of stressed about it.
Dear Friend
I readr your article about red hot ears
so do u got the tests and wht are the results kindly mail it to me
do they occure when u think or pass through mental stress or anger.
Thanking you
IAnonymous - 13th May 2006
Hello ! My ear(sometimes both) get really hot and red for about 1-2 hours almost every evening. When I described this in a mail to doctor he said that it could be a part of the carcinoid syndrome. So now they are investigating my levels of hormones(in the blood and urine)to check if I have carcinoid (slow growing malignant cancer) or not. The results should be ready the next week.
Hi Everyone. I have had a carcanoid tumour removed (1979) and did have the horrible flushing. I recently (2001) well I guess not so recently was diagnosed with relapsing polychondritis. It affects any cartilegde, so could affect the upper part of your ear but not your ear lobe as there is no cartiledge there. Hopes this helps.
I am 73 years old and have been having this painful, red ear problem for several years. Just last year an ENT doctor diagnosed it as relapsing polychondritis. It affects one ear or the other, sometimes both. When it happens, the ear is not only red but becomes very swollen and extremely painful. And it doesn't come and go in an hour or two as in some of the "red ear" cases here. Mine will last about ten days. It starts slowly, peaks for about 4 days and then starts, very slowly, getting better. There is no known cause or cure but it has something to do with the autoimmune system. It does just affect the cartilage and not the ear lobe. When I get an episode the only thing I can do is to take Advil for the pain and put an ice pack on my ear. I have learned to live with it. My husband has almost the same problem. But with him, the cartilage between the breast bone and the rib cage is affected and it is called Costochondritis.
Dear friend, It is possible that this apparent cyst is a Carcinoid tumor. This is a rare neurendocrine neoplasm. The test you should have done is a chromgranin-A, and an octeotide scan, e-mail for more info.
Comment
Hi Rajnikant,
I have been tested for carcinoid (5HIIA urine collection) and for systemic mastocytosis (imidazole acetic acid urine collection) and all tests have been good. My doctor takes this seriously but they can´t find the cause.
Now it´s almost one year ago when I first noticed this. Regarding stress I can tell you that I have been in a very stressful situation since 1 1/2 years ago when they stared to investigate a cyst in my spleen. They didn´t know if it was malignant or benign. One year follow up of the cyst showed no change in size or shape so it´s benign but I´m still kind of stressed about it.
Parent comment
Dear Friend I readr your article about red hot ears so do u got the tests and wht are the results kindly mail it to me do they occure when u think or pass through mental stress or anger. Thanking you IAnonymous - 13th May 2006 Hello ! My ear(sometimes both) get really hot and red for about 1-2 hours almost every evening. When I described this in a mail to doctor he said that it could be a part of the carcinoid syndrome. So now they are investigating my levels of hormones(in the blood and urine)to check if I have carcinoid (slow growing malignant cancer) or not. The results should be ready the next week.
Replies
Hi Everyone. I have had a carcanoid tumour removed (1979) and did have the horrible flushing. I recently (2001) well I guess not so recently was diagnosed with relapsing polychondritis. It affects any cartilegde, so could affect the upper part of your ear but not your ear lobe as there is no cartiledge there. Hopes this helps.
I am 73 years old and have been having this painful, red ear problem for several years. Just last year an ENT doctor diagnosed it as relapsing polychondritis. It affects one ear or the other, sometimes both. When it happens, the ear is not only red but becomes very swollen and extremely painful. And it doesn't come and go in an hour or two as in some of the "red ear" cases here. Mine will last about ten days. It starts slowly, peaks for about 4 days and then starts, very slowly, getting better. There is no known cause or cure but it has something to do with the autoimmune system. It does just affect the cartilage and not the ear lobe. When I get an episode the only thing I can do is to take Advil for the pain and put an ice pack on my ear. I have learned to live with it. My husband has almost the same problem. But with him, the cartilage between the breast bone and the rib cage is affected and it is called Costochondritis.
Dear friend, It is possible that this apparent cyst is a Carcinoid tumor. This is a rare neurendocrine neoplasm. The test you should have done is a chromgranin-A, and an octeotide scan,
e-mail for more info.