All, I am 48, have had the RHES at least since I was 28, there seems to be no real reason for it and I can not predict when it will happen! It will happen in a hot room and spread from my left ear to my left cheek to my right check, then the entire face and then my right ear. I have found a few things that help, but generally they can't be done when this happens and it happens everyday, several times per day. If I can get to a car during the episode and have the air on HIGH and point directly at my left ear, after about 20 minutes, it will go away... but who can do that several times a day and work! Other thing that helps, when I travel is to return to the hotel room and trun the air conditioner on HIGH and lay my face (on the left side, on it), this too can take away the problem, but if I am rushed, it doesn't work and lastly, If I take like 3mg to 6 mg of Alprozalm a day, it controls it, but that stuff is not good for you at all. I have been in generally good health all my life, I don't drink, smoke or anything like that. I do have an undiagnosable left leg pain that is with me every moment of every day and extends the entire lenght of the leg including the hip. I have seen several specialists over the last 30 years for this, and they see nothing significant on any test. I am at a complete loss to know the casue of either of these, and I don't believe that they are connected in any form. I do wonder though, if the main blood vessel or artey that goes to the ears (there seems to be several blood vessels, but only one that is very large compared to the others) was to be rerouted via surgery to another internal blood flow vessel, would that fix the problem. Has anyone every considered this thought? The ear would still get blood because of the other vessels, but this one is the one that seems to start and gets RED HOT then to the ear then they get so HOT they become PURPLE and PAINFUL!
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All, I am 48, have had the RHES at least since I was 28, there seems to be no real reason for it and I can not predict when it will happen! It will happen in a hot room and spread from my left ear to my left cheek to my right check, then the entire face and then my right ear. I have found a few things that help, but generally they can't be done when this happens and it happens everyday, several times per day. If I can get to a car during the episode and have the air on HIGH and point directly at my left ear, after about 20 minutes, it will go away... but who can do that several times a day and work! Other thing that helps, when I travel is to return to the hotel room and trun the air conditioner on HIGH and lay my face (on the left side, on it), this too can take away the problem, but if I am rushed, it doesn't work and lastly, If I take like 3mg to 6 mg of Alprozalm a day, it controls it, but that stuff is not good for you at all. I have been in generally good health all my life, I don't drink, smoke or anything like that. I do have an undiagnosable left leg pain that is with me every moment of every day and extends the entire lenght of the leg including the hip. I have seen several specialists over the last 30 years for this, and they see nothing significant on any test.
I am at a complete loss to know the casue of either of these, and I don't believe that they are connected in any form.
I do wonder though, if the main blood vessel or artey that goes to the ears (there seems to be several blood vessels, but only one that is very large compared to the others) was to be rerouted via surgery to another internal blood flow vessel, would that fix the problem. Has anyone every considered this thought? The ear would still get blood because of the other vessels, but this one is the one that seems to start and gets RED HOT then to the ear then they get so HOT they become PURPLE and PAINFUL!