Comment

Grey

I'm worry, but you seem to overreacted on this one.

The symptoms your husband is experiencing speak more strongly to a constant condition, most likely trigeminal neuralgia.

The condition we're discussing is how, occasionally, one of our ears reddens for an as-yet uncertain reason(s).

As for me, it seems to clearly emanate from the trigeminal nerve, but not in the neuralgia sense. I've had it for over a decade, and I'm 25, male, O+, well managed/masked OCD. Also suffer from PTSD and panic disorder, which can affect me for six-months/year at a time, but eventually fade into the background.

Let's not take the O+ type into consideration, as it's the majority bloodtype, or rather plurality. I think it's est. at something like 37% of the population.

It can sometimes precede a headache, at least in my experience, located also on the same side (right). In any case, when it happens, I can feel the ear burning, or someone will notice & point it out.

I'd certainly like to see us all try some data collection. When it happens, what we've eaten, environment, etc. Also, my ear is right, and I'm right handed, though was left-handed as a kid; my parents were weirdos who believed lefties were in danger of going to hell or something.

So, we'd basically need to collect some general data about ourselves and medical histories, along with logs of when/where/under what circumstances.

I may be able to devote a section of my website with it, if those who've expressed interest still have it. We can put together a questionnaire, and obviously just use coded numbers for patient ids, or work totally anonymously.

Email me with thoughts.

Parent comment

beenthere222222222

You fool - my husband is dying in ICU of lung and heart failure but on top of this he clinches his teeth, trembles and grimaces as the ear turns hot, burn, stings, and is excruciating, ENT doc is too dumb to diagnose it - my EX husband took lightly the excruciating pain of a tumor growing in my uterus the size of a softball (until it was removed) - docs too dense to find it for 7 years of agaony because it was buried deep in me so my EX husband said why worry, who cares, you gotta take it like a man UNTIL he got kidney stones and was slung over on an ER counter too busy for immediate attention and had to endure - then he was in sheer agony - we are taught empathy all of us eventually - perhaps you should develop more empathy before Karma teaches it to you in a future year when you least expect it.

Replies

Scott

Grey, I think collecting data is a really good idea. It will help us identify the high drivers of this. Please email me with information/ questionaire/weblink if available. Thanks

Peter

this sounds like a great idea.
Could you write the adress of the website so I can contribute with my facts. My ears gets red in the afternoon or evening every single day.
Triggers by touch,temp. change, lying down etc.

zab

Grey...I would be happy to participate.

Cheryl Marconi

Grey-
I'd like to know what you find out from the data. My 5-year-old son gets red ear or ears just about every evening at dinnertime. His father and uncle also get it. I am also a writer, and would be interested in writing an article about this research to make the issue more public. Obviously, it affects a lot of people.