I have the same symptoms like you ! However my Rheumatologist says there are no tests that will confirm Relapsing Polychondritis. How did your Rheumatologist rule out Relpasing Polychondrities for you ?
Patrick again!!!
Just wanted to let you know that the Rheumatologist has ruled out Relapsing Polychondritis (thank goodness) and has now referred me to a Neurologist to work me up for Trigeminal Neuralgia! I don't have the severe pain that these people do, but there may be some relation to the symptoms?
Just saw my ENT MD and he thought it might be related to TMJ syndrome?
I'm getting sick of seeing specialists and no one has the correct answer!!!
While I wait on the appointment with the Neurologist I will set up a meeting with an Acupuncturist who also does massages!
MY ENT MD suggested that an epidemiological approach to this syndrome would be very beneficial for data collection! Any researchers out there?
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Patrick,
I have the same symptoms like you ! However my Rheumatologist says there are no tests that will confirm Relapsing Polychondritis. How did your Rheumatologist rule out Relpasing Polychondrities for you ?
Parent comment
Patrick again!!! Just wanted to let you know that the Rheumatologist has ruled out Relapsing Polychondritis (thank goodness) and has now referred me to a Neurologist to work me up for Trigeminal Neuralgia! I don't have the severe pain that these people do, but there may be some relation to the symptoms? Just saw my ENT MD and he thought it might be related to TMJ syndrome? I'm getting sick of seeing specialists and no one has the correct answer!!! While I wait on the appointment with the Neurologist I will set up a meeting with an Acupuncturist who also does massages! MY ENT MD suggested that an epidemiological approach to this syndrome would be very beneficial for data collection! Any researchers out there?